We are developing a set of patient support initiatives using the following pillars:
Financial assistance
New Glasses Program
We aim to launch a new program to assist families with the financial burden of new eye wear. The details of this program are being develops and will be added to our website by the end of 2024. This will be a combination of direct financial support and hopefully a partnership with a national eye wear provider.
Assistive devices
This is an initiative that we will work on beyond 2025 to help patients to acquire necessary assistive devices that are not traditionally covered else where.
Support Groups
We have 2 community support groups.
- The first is our patient Facebook group. You can find and connect with other people with Aniridia.
- The second is our private forum on this site where you can ask questions privately and get connected with professionals
Patient Resources
We are continually developing a database of resources for patients through partnerships with other organizations.